Saturday 11/28 – Holiday season, another big trip, and a happily noisy house

With Halloween and Thanksgiving down, and Winter fast approaching, we give thanks and are grateful for all we have. Tomorrow we embark on another journey, this time to Cincinnati Children’s Hospital to learn what the future holds, and just this week we were privileged with a beautiful sound in our home.  Continue reading

2014 Congenital Heart Walk

In one week on Sunday June 29th J-N-J will be walking to raise money and awareness in the 2014 Congenital Heart Walk at the Boathouse in North Park, about 15 miles outside of Pittsburgh. The Congenital Heart Walk is an ongoing national effort between the Adult Congenital Heart Association (ACHA) and The Children’s Heart Foundation (CHF). We walk to honor and remember the millions who have been impacted by congenital heart defects and disease (CHD). If you are able to join us at the walk, we would love to have you join our team, but at the very least if you can please consider making a donation of any kind – even $5 helps tremendously (links below).

The Congenital Heart Walk is the only national event series dedicated to fighting congenital heart disease, with the goal of raising much needed funds to benefit cutting-edge research, patient programs, and advocacy initiatives. Congenital Heart Defects range in complexity, but many babies born with a CHD will require open heart surgery or other interventions to survive. CHDs affect approximately 1 out of 100 children, and are the leading cause of all infant deaths in the US and Worldwide, but only a fraction of a penny of each dollar the government spends on medical funding is directed towards congenital heart defect research. Please help us raise awareness and show support for this incredible cause that has touched us so personally.

If you are thinking about or have already donated, you have our most sincere thanks, not just from us, but from Heart Families everywhere.

Please visit any of the donation links below

Link to Nate’s donation page

Link to Jessica’s donation page

Link to Team Truncus page (please click here if you wish to join our team and walk with us!)

Any donation at all is greatly appreciated and will go to an incredible cause, but please do not feel obligated if you are unable to donate at this time. Your love and support is enough to help us walk proudly.

Judah says “Thank You!”



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1st Birthday Bash! – Save the date

First Birthday Bash!

Hey everyone, Judah here – just wanted to let you know about this awesome party i’m having for my 1st birthday coming up in September. It’s going to be going down on Saturday, September 28th, 2013 at the Children’s Home of Pittsburgh, a wonderful place I spent a while at and really love. Please join us if you can. More details will be coming soon. Continue reading



The posts below are a chronicling of my life so far of growing up with a heart defect. If you’re new to my page and want the whole story, start at the end, as the most recent updates are always first. To be notified by email automatically when a new update is posted, enter your email address in the box to the right and click the “Subscribe” button, or
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