After a pretty eventful week, full of appointments, meetings, and advances in his feedings, Judah had another minor hiccup in the road yesterday. First, to fill you in on the week. After a very good appointment with the cardiologists on Monday, and passing his swallow study with flying colors on Tuesday, Wednesday we met with our team of doctors and therapists to discuss our progress, and the road ahead. Continue reading
Life goes on for all of us, living at the Children’s Institute. This weekend brought some colder weather, but we were sure to get Judah out for a couple of walks before the rain came. He loves wearing his fuzzy sweatsuit his gramma bought him, and looks absolutely adorable in it. With the colder weather came the wrath of Sandy, no, not gramma Sandy, she is always nice to everyone, but a not so nice “superstorm” that caused a lot of problems for a lot of people. We wish everyone affected by this hurricane our thoughts and prayers, and hope they can all return to normal life soon with little or no damage and interruption. Continue reading
Judah continues ahead on his road to recovery. In the past couple of days his therapists have tested some new feeding methods, and made some great progress. He is drinking more and more from the bottle directly, 3 meals out of each day his therapy sessions have him drinking the breastmilk/rice cereal mix. In the last few days the therapists have reduced the amount of rice cereal being added, to thin the milk out and let him drink more since he is doing so well with it. He is generating a great rhythm in his sucking and swallowing, and this will be the key to drinking more and more and reducing the amount he has to take through the feeding tube. Continue reading
Yesterday marked Judah’s 6-week birthday, and after a slow start he is continuing to put on weight at just under 8lbs, and he has stretched about an inch or so. Things are certainly different here at the Children’s Institute than they were at the Hospital. It’s a much smaller facility, but thankfully it is much closer to home.
Here, his primary focus is on feeding, and he has been working hard with his therapists every day. Continue reading
A few days at the new facility have brought a lot of changes in Judah’s day to day schedule. The Hospital was a lot of monitoring, watching his vitals and just giving medications, here at the Institute Judah has a rigorous schedule of therapy and eating.
Since coming to the Children’s Institute, Judah has been working with a team of speech, physical, and occupational therapists. The primary focus for J while he is here, is to start eating again from the bottle. From our first day here, the therapist team has been working with him 3 times a day, 6 days a week, to begin his feedings from the bottle and slowly work his volume up. Continue reading
Exactly 4 weeks ago today little Judah had a major surgery to repair his heart. Two weeks ago today we moved from the Cardiac Intensive Care Unit up to the 8th floor recovery area, and today we moved one more time to a new facility, a step down pediatric rehabilitation clinic! Just five weeks and a few days ago our little boy was born, and he has had so many milestones since then. Continue reading