Quick update for family, friends, and fans
As Judah’s nurses might expect, his tummy and his need to get out of bed are the biggest issues. Even though he is LIQUORED UP, our little bear fights through it and tries to move around (BIG no no with the breathing tube). And because he’s got plenty of meds going, his belly has stopped. So he’s getting nutrition in a way that’s a bit more invasive.
But he’s been mostly comfortable this week, and our team is AWESOME at problem solving! Continue reading
The day we have long awaited has finally come, and it went better than we ever could have imagined. Continue reading
As of last night we have arrived in Cincinnati. Now we prepare for the long awaited next steps and Judah’s 2nd attempt at a Laryngotracheal Reconstruction, this time with the amazing team at Children’s Hospital of Cincinnati, bright and early tomorrow morning. Continue reading
After spending 5 nights in Cincinnati, an entire battery of intake and processing at a new hospital, and undergoing various scans, scopes, test, procedures, and meeting with an amazing new team of doctors, we have complete confidence in our new airway team, and a renewed hope for big changes in the Spring. Continue reading
With Halloween and Thanksgiving down, and Winter fast approaching, we give thanks and are grateful for all we have. Tomorrow we embark on another journey, this time to Cincinnati Children’s Hospital to learn what the future holds, and just this week we were privileged with a beautiful sound in our home. Continue reading