After spending close to 7 Months in the hospital, exactly one year ago today Judah came home for the first time. When we brought him home Judah couldn’t sit up on his own, was on ventilator support 24 hours a day, and was just a chubby bean.
In the year he has been home, he has grown stronger and developed faster than many thought was possible. He continues to get smarter, more curious, and cuter by the day.
Today Judah is an unstoppable walking force. He walks all around the house, up and down the hallways, making his way up all of the steps completely on his own. He knows which books he wants to read, what games he wants to play, and where he wants to go. He continues to learn more words with his sign language, and has been completely off the ventilator day and night for close to 5 weeks now, while tolerating it amazingly.
A recent evaluation from the company that provides Early Intervention Therapy (Judah’s physical, occupational, and speech therapists) showed test scores mostly on the high end and above average for Judah’s age, and he is even showing skills and traits well beyond his age. Judah is still behind a little bit in a few categories, since feeding is such a difficulty and his verbal communication is nonexistent since he cannot make noise, but his cognitive function, personal-social interaction, and his receptive language scores are extremely high. His therapists and doctors are absolutely amazed at how well he is doing, but when you look in his eyes his brilliance should be no surprise.
Soon Judah will have an appointment with the Combined Airway Clinic, and we hope to get more information about what will come next as far as his reconstructive surgery and decannulation. But today, one year from coming home we can look back and see how far he has already come.Thank you all for your thoughts, prayers, words, and love, they have truly helped us get this far, and continue to push us forward.