Welcome back and thanks again for joining us as we continue to watch young Judah grow and thrive! Judah is doing fantastically at home, where he has been now for almost 8 weeks after spending his first 6 months of life in the hospital. At home, Judah can play with all of his toys, hang out on the couch with his monkey, sit in a variety of rocking, bouncing, and swaying chairs, and even as we saw in the last update playing in his Wonderbug.
The last couple of weeks have brought additional changes and excitement! Judah is now visited at home once a week by each an Occupational Therapist to help him work on his feeding skills, as well as a Physical Therapist to help him develop his gross motor skills. OT has given us some new ideas and ways to play to incorporate making eating less intimidating and more pleasurable for Judah, including a high chair and allowing him to get down and dirty with his food, as well as just playing with the food and letting him put things in his mouth on his own. Judah does very well with his pacifier and is getting better with the spoon, but once a flavor is introduced he does not love the taste in his mouth. For most of his life he has taken almost all of his food through a feeding tube (currently a Mic-Key button directly into his stomach). He continues to work, and shows signs of improvement already. For now though, his hand is still tastiest of all.
We continue to try to get Judah outside as often as possible, and the Springtime here in Pittsburgh has been lovely so far (except for daddy’s allergies). Judah goes for walks every day it is nice outside with mommy, his dog Rider, and the nurse, and on the weekends when Daddy is around during the day we continue going out often to the park or to Oakland, where daddy works. Recently we were able to take little J to an event hosted by the Carnegie Library and the Carnegie Museum called “Play Day”, where they opened up the museum and all the grounds around it and had puppet shows, and games and activities, and Judah got to see the dinosaurs at the museum for the first time. He had a lovely time and even got to see where daddy works!
Judah has also recently taken a great interest in musical instruments, as he loves playing with his drum and his newest toy, his piano! He really has some talent building here, and you can see him already in great thought as he works on his first Sonata.
Overall Judah continues to thrive at home, and we couldn’t be happier to have him here. He is the most wonderful and well mannered child we’ve ever known, and quite possibly topping the charts as far as cutest baby of all time. Even his cardiologists continue to be impressed by him, and at his appointment with cardiology today they continued to adjust, and in many cases reduce some of the medications he is on as they are no longer needed. His recent x-rays and echocardiogram both came back with very positive results, showing great heart function. Judah continues working on his CPAP trials and moving forward every week, increasing the amount of time per day that he is on the lowest ventilator settings. We could not be more proud of our little man!
Our continued thanks and love to all of you for your continued love and support.