193 days. We’ve waited 193 days, but at long last the day has finally come. Today, we were able to bring our son home for the first time. After several good days in a row, this afternoon Judah was discharged from Children’s Hospital. Now that we have our home nursing in place, and most of our medical equipment has been delivered, we were as prepared as possible to finally welcome our son into our home, and with him here, it truly feels like home.
Today was a flurry of activity, with nurses, coordinators, medical supply deliveries, and people coming in and out all day long to help us get settled in. These first few weeks will be a hectic and crazy yet incredible new experience for us, one we have looked forward to for over 6 months.
Judah is healthier today than he has ever been. While for Mommy and Daddy these next few weeks will take a lot of getting used to, and there will be occasional freak outs and fears and worries, there will also be a lot of cuddling and playing and loving time in our own home we have been waiting so patiently for.
We now move into that next phase that always seemed so far off on the horizon, being home together as a family. Although it was very sad to leave the friends and family that we have made at the Hospital and at the Children’s Home, we are truly ready to be the caregivers that Judah needs now. Judah’s cardiac journey is far from over, and he will have a number of appointments, follow ups, procedures and more in the coming days, weeks, months and years, but he already seems comfortable sleeping in his own bed, and seeing him there gives us more comfort than can possibly be imagined.
All of our love, finally together at home,