Judah has been home for exactly one week now, and he already loves being here. We only had to go back to the Emergency Room one time this week, and we were only there for a few hours so the doctors could run some blood tests (all of which came back normal). There has certainly been a lot to get used to for mommy and daddy, and it may take a couple of weeks to get into a regular schedule again, but Judah certainly seems to prefer being home to being at the hospital, and so do we. At home we still having nursing help, from 11pm to 7am a nurse comes by to watch him and give him his medications overnight so mommy and daddy can sleep. From 7am to 3pm, a different nurse comes by to spend the day with him and help mommy take care of him and play with him, and allow her the chance to run errands and take care of herself and the house while daddy is at work. from 3pm to 11pm mommy and daddy are in charge of Judah, and that’s when daddy gets time to play with Judah, and we both take care of all of his needs, including bath time, trach care, feedings, medications, and anything else we can fit in. It’s a tight schedule, but it is becoming routine again and soon will be second nature.
Being at home gives all of us the opportunity to do many things we could not do in the hospital, including getting on the floor to play, sleeping in a real crib, moving from room to room, and getting kisses from the doggie. Judah and his dog Rider have become very good friends already, and Rider guards Judah and watches over him every chance he gets. The cat seems to be aware that there is a new person in the house, but he doesn’t pay much attention, in fact, he is even happier now that there is someone else to distract the dog.
This first week was very important in allowing us to get a feel of what normal life with a child is like, and although Judah requires a lot more care, attention, and supervision than a completely healthy child, we are more than happy to lavish all of our attention on his smiling face. On Monday Judah will be 4 weeks out from his last open heart surgery, and we can tell by his smiling face and kicking feet that he is feeling much better and recovering very well.
The coming days and weeks will bring more changes as we begin to have more doctors appointments that we will have to pack him up in the car for, and we will work with therapists in the home to try to get back on track with feeding and physical therapy. Although it takes a long time to pack up Judah and his equipment onto his special Kid Cart stroller, hopefully soon the weather will finally turn nicer and we will be able to take Judah for walks around the neighborhood and to the park. We look forward to updating all of you with more of the interesting and fun new experiences we will share together.