We truly didn’t think it was possible, but Judah continues to get cuter everyday. He has also continued to grow and get healthier every day too. Judah has stretched another inch or so, and is now approaching 16.5 lbs. This week his second tooth has even broken through!
We’ve been trying to get outside to play as much as the weather allows, Judah goes for a walk with Mommy, his dog Rider, and the daytime nurse most days, and has made it to the park a couple of times with both Mommy and Daddy. Last weekend we even got to take part in The Pittsburgh Super Stroll, an event where children got to dress up like superheros and walk around Oakland to raise awareness and money for the Pittsburgh Children’s Hospital Free Care Fund. Judah put on his best SuperHero gear and got to stroll around in the sun on a lovely day.
Judah keeps getting bigger and bigger, and now that he is far enough out of surgery we can lift him up from under his shoulders again. This means a whole new set of toys have opened up for him, and we are all very excited to get to play with them. Judah’s newest favorite toys are his WonderBug and his Johnny Jump-Up.
Last week brought a number of appointments, and for the most part Judah is doing fantastically since his second open heart surgery just 7 weeks ago. The bigger appointments from the week have been a visit to the Airway clinic on Tuesday, and on Friday he went into the OR for a Trach Scope. At the airway clinic they told us to keep doing what we are doing as far as working to adjust Judah’s ventilator settings. Every week we will continue to report back to them and make changes with them. If he continues to do well, we will keep working on adding more time that he is on reduced vent settings, until eventually he can be on the lowest settings all day long. Then we will begin working on taking him off the vent completely. this could take from 6 months to a year, but with each passing day he does better, and grows stronger. The trach scope on friday brought both good news and not so great news. The good news is that Judah’s airway is strong and healthy, but the bad news is that all of the scarring and irritation Judah’s throat suffered when he was very small, the reason he is currently trached, has matured into solid scar tissue, and before Judah is able to get the trach out – a process called Decannulation – he will need a Laryngotracheal reconstruction (LTR) – a reconstructive surgery on his throat to remove the scar tissue and rebuild his airway. It is another pretty major surgery that may require a few weeks in the hospital, but we hope that in 6-12 months when we are ready to discuss it more, he will be even bigger and stronger still.
Overall, Judah continues to be one of the happiest, smiley-est, and most adorable children ever. He is an absolute delight, night and day. To see him playing so happily, and see him so healthy, it is difficult to even believe all of the things he has been through. As always, our continued love and thanks to all of you who come by to see how we are doing, and who always bring us strength and support.